Five years and one and a half months after transplant and the lambda light chains were still rising (46) so I increased the Revlimid and I added dexamethasone on weekends. That made the chains drop to 34. It makes sleeping very hard; I suppose I’ll have to start using Ambien. Neuropathy increasing but I’m still walking. I’m trying to give up sugar and carbs but it’s not easy when you have a mother that likes sugar and carbs. still doing some freelance work at home but not enough to provide a decent check. Not sure I could handle a full time job. I am converting a small barn 10 x 16 in to a guest house, that’s my project for now. I just hope I don’t run out of money. The guest house should provide some income when done.
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