suemagoo

Still moving forward…

suemagoo — Fri, 17 Feb 2012 19:05:28 +0000

Still losing some weight, taste buds still broken. But I’m getting there slowly. Slowly is the problem, I’m wayyy too impatient. (Like that’s a big surprise!) Won’t be going back to work for another month and a half because of the stem cell transplant. And that’s not for certain. I get tested by way of a bone marrow sample, under sedation of course, march 29, so keep your fingers crossed. Blood test two days ago showed very normal levels so that’s great.

Skin peel

suemagoo — Thu, 09 Feb 2012 03:31:10 +0000

Alright, here’s something I didn’t know. My chemo drugs were gemcitabine, busulfan and melphlan. My skin got darker in places and started peeling. Not that bad but now I’m peeling all over now, even the palms of my hands! Last PA said “oh, yeah, your whole body will do that and then you have new skin. Its the stem cell transplant.” Its still not that bad, but every day or so, it’s a new surprise!

Feb 7, day ?

suemagoo — Wed, 08 Feb 2012 22:33:53 +0000

Still on the mend. Walked a small block yesterday at home but at a vigorous rate and my muscles are paying for it now! Taste buds getting a little better, ate fried cat fish Yesterday and salmon today. I’m going to try to be a working person in two weeks or so. I walked again this morning and went to grocery store, with my mask on. Not too bad. One guy asked if that was for the flu and viruses going around and I told him yes! >;o)

Feb 1

suemagoo — Thu, 02 Feb 2012 05:55:17 +0000

Today had final blood and urine tests. I’m clear of myeloma! Heading home on Friday!

I’m due back for checkup in two months.

Day 30, Jan 27

suemagoo — Fri, 27 Jan 2012 23:37:24 +0000

Still sleeping better and better. Ate a frozen dinner, spaghetti, the whole thing! 1st time! Dr appt moved to next Wednesday. Not so happy about that. Walked twice around the whole rv park. good day today

Day 27, Jan 24

suemagoo — Tue, 24 Jan 2012 21:36:48 +0000

I can sleep all night now, sometimes with the aid of pills. Appetite is better, nausea is a little less of a problem. Met with Dr. yesterday. She said I did better on the harsh regimen than anyone else. Heck yeah I’m braggin! I meet with her again next Monday, and I should be going home that week if all goes well. Oh Lord I’m ready! I watch tv shows about food all day but then I still don’t eat much. But it’s getting better.

Day 24 , Jan 21

suemagoo — Sun, 22 Jan 2012 00:27:38 +0000

Yesterday was wayyyy down, very tired, nauseated, couldn’t walk much. Leg cramps kept me up all nite. Had an appt this am and had to get a unit of potassium. Wheel chair going in and energetically walking out! My weight still going down… I eat, but it tastes so bad most of the time. I’m beginning to get interested in cameras again, so that’s a good thing.

Day 22, Jan 19

suemagoo — Fri, 20 Jan 2012 04:40:31 +0000

Day 22, Jan 19
Days are up and down as are white blood cell counts. 2.8 now. Yesterday very nauseated and tired, slept poorly. Today much better and walked longer and faster. Taste buds still trying to make a comeback!

Day 16, Jan 13

suemagoo — Fri, 13 Jan 2012 20:33:50 +0000

Came home to the rv and had a bad nite due to back pain, but I’ve got pills for that . WBC went back up, it tends to waver a lot. Great to be out of MD!!! Still can’t eat much, but as soon as taste buds come back I should “fluff” up just fine.

Day 11 — Day14

suemagoo — Thu, 12 Jan 2012 00:37:57 +0000

Day + 11, Jan 8 ~ Day + 14, jan11

Day 11, Jan 8
Yesterday was an ok day. Nausea is still around as well as this mucositis coating my tongue and throat. Makes everything tastes like some kind of metal . My numbers are still soaring. 1.96 today for the white blood cell count. Dr wants me to drink two small pitchers a day, which is very difficult what with the nausea and mucositis and bad taste.

Day 12, Jan 9
Huge floods and rainstorms in Houston today. Not a good nites sleep last nite, a lot of nightmares. Actually woke up surprised to be where I am. Pain mostly gone from tongue and throat, and that metal taste is still there. White blood cell count is now 4.5. Just took a long walk with one of the nurse assistants. Mom stayed home at rv taking care of a pipe leak plus the rainstorms and tornadoes making a bit of a threat…
I still need this mucositis to be gone so I can drink. Came super close to losing it when I drank a cup of water.

Day 13, Jan 10
Nauseated the whole day. Stayed in fetal position as much as possible. Very hard to drink or eat, much less walk.

Day 14, Jan 11
Same nausea, trying to drink as much as possible. Since they’re discharging me tomorrow nite, I have to walk so I did twice. I do feel somewhat better. Getting ready to turn in. White Blood cell count is 3.4.